Deanna Fei: Girl in Glass



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Y into a swimming pool or a patient with AIDS or a senior ndergoing an organ transplant the costs must be borne by the employee premiums and they must be explainedI think the author overreacted to his comments and failed to see them realisticallyHowever the book describes vividly the treatment of babies in NICU the effect on the family the ncertain future and the difficulty in making the best decisions about treatmentThe author explores thoroughly aspects of medical privacy and the problems of employees obtaining andor maintaining employment once information about a medical condition in a family member is discovered which is basically as soon as the claim is processed I wish the author had gone into this in detail It is a much serious problem than she had Her husband was not fired to avoid paying medical costs for her babyShe also examines thoroughly the history of decision making in the lives of premature intants their futures possible disabilities and costs She makes very good points in comparing the cost of intensive care treatment for babies to that of adults with terminal diseases Her argument is consistent and effectiveOf course she does not deal with the problem of paying the bills Someone must pay exorbitant medical costs Yes she had a contract the company honored the contract and paid the claims but still it was her husband s co workers who paid the bill She somehow does not see the reality of the situation She could afford preschool care a babysitter taxis entertainment and dining during this crisis and also pay her part of the medical bills without going bankrupt But for the average earner a 400 premium increase in one year is very difficultI wish that she had researched solutions to this problem such as caps to medical treatment that are part of the policy with options to purchase extended coverage if desired I am not saying that the life of the baby was not worth 1 million I am saying that there is a way to balance health plans that is acceptable to everyoneThis is a problem that is much serious than Tim Armstrong s comments There needs to be protection of privacy in medical information so that companies are not allowed to know the medical claims of its employees Laws also need to be made to protect people s employment so that they cannot be fired because they are too expensive to the medical planI would have liked to see about this issueYet this book is very readable the author is very expressive of her emotions and very effective in her writing style It is thorough almost to being tedious in some spotsBut I find it hard to imagine a book that covered information and issues in 300 pages than this bookIf any of these topics interest you then the book is well worth reading This book is important for Americans to read than most will ever knowYes it is an often painful challenging heartbreaking heart warming story of a tiny baby girl born too soon and how her birth and fight changed those around her and many It is also an eye opening account about how our health is a commodity in the United States How sing than your share is shameful How easy it is for our medical systems to completely bankrupt and ruin your life We should all read this book How much is your life worth This is an astounding and powerful book for any parent I passed it by on the library shelves several times because I thought it would be too sad andor trite Instead it s a moving but very grounded book about a family s experience in an extremely precarious ncertain medical circumstance followed by their public shaming in an example of crass callow corporate greed I salute the author for sharing her story and writing it so well without any sentimental artiface and hewing close to the dark moments that must be the truth in a situation like this one I received a fre. Her daughter home from the hospital the CEO of AOL her husband's employer set off a national firestorm about the children he had called “distressed babies” By blaming the beautiful miraculously healthy little girl for a cut in employee benefits he attached a price tag to her life Girl in Glass is the riveting story of one child's harrowing journey and a powerful distillation of parenthood With incandescent prose and an nflinching eye Fei explores the value of a human life from the spr.

Essential reading for NICU nurses neonatologists OBGYNs and anyone touched by premature birth So much of the NICU experience is isolating panic inducing and difficult for anyone who hasn t been there to The Greeks Acquisition understand Most of what I ve seen on the topic has either been a medical guide or a children s book to read to siblings of premies I m so glad Fei decided to write plainly about her experience It will certainly help parents of premies and all those who love them Really intriguing interesting read I had read about Deanna and her daugbter in a article online so when I came across the book I had to check it out And I m so glad I did Deanna put a human and a mother s perspective on things but man oh man I only got through certain sections of this book knowing that her daughter eventually gets released from the NICU and is okay in the end I found the last chapter with all the medical and insurance information and details about similar casesite interesting Beautiful book Moving and illustrative Fei talks about her baby s 3 month stay in the NICU after being born at 25w3d and about her own struggle as a mother during that time and about the shock of being in the limelight after the CEO of AOL cuts employee benefits because of two distressed babies who cost the company s self insured health plan too much one of the distressed babies being her child About 23 of the book is a meditative reflection on baby Mila s NICU stay and her attendant medical issues the other 13 is a straight ahead discourse on health care in the US and the AOL situation and health care costsfinancing and HIPAA concerns These two paragraphs struck me though the sentiment within is a tangent from the meat of the book In fact NICUs are actually extraordinarily cost effective once we draw a logical comparison not between babies who need intensive care and babies who don t but between babies and adults who need intensive care While over 80 percent of ICU resources are spent on adults who go on to die in the NICU than 80 percent of resources are spent on babies who The Amish Nanny (Brides of Amish Country, ultimately service even among the tiniest babies This is partly because the babies who will die tend to dieickly regardless of heroic medical treatmentYet NICUs are often depicted as extravagant departments in a way that other high cost hospital The Healer (Borderland Brides, units such as orthope I did not enjoy this book and I would not recommend it to family or friendsTo be fair my opinion of it should not affect my rating or review It is an extremely well written book thoroughly researched and backed by facts It is a frank and honest memoir of the changes in the heart of a woman who growsp considerably as she learns to love and fight for her daughter I was disappointed in the brief treatment of Tim Armstrong s comment about distressed babies and their effect on the cost of employee medical plans It was almost a non event with an apology given immediately and immediately accepted with a reversal of the decision to change the retirement plan employer contributionsI did not feel that this issue was dealt with fairly In zero sum medical plans all medical benefits are paid for by premiums If it is an expensive year for claims premiums increase the next year If the treatment for the 2 distressed babies cost 2 million then the cost shared among 5000 employees would be 400 If premiums go The Slayer (Time Raiders up 400 in one year employees deserve to know the reasonMost labornions and employee groups would vote to put this additional cost in the future by a reduced retirement plan than have 400 added to their premiums immediately Tim Armstrong was explaining to his employees the method of dealing with these costs True his remark lacked tact and caused an proar in the media But it does not change the facts Whether it is a distressed baby or a drunk teenager diving recklessl. Deanna Fei was just five and a half months pregnant when she inexplicably went into labor Minutes later she met her tiny baby who clung to life support inside a glass box Fei was forced to confront terrifying issues How to be the mother of a child she could lose at any moment Whether her daughter would survive another day and whether she should But as she watched her daughter fight for her life Fei discovered the power of the mother child bond at its most elementalA year after she brought.

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E copy of this book via Netgalley in exchange for an honest review I found the introduction of this book to be particularly powerful The writing is descriptive and commanding I found this to be raw and blunt Given that I was also a girl in a glass box born two moths prematurely myself I found the story easy to relate to The tone changes to what I would call of a miracle story at about 60 percent through so that s different but I still enjoyed the book overall Girl in Glass is the story of Deanna Fei and her family who were thrust into the media spotlight a couple years ago when the CEO of her husband s company stated that her child was one of the reasons that he had to cut benefits for the company In Girl in Glass we see how Fei deals with the super early birth of her daughter the hurdles that brings and the hurdles that are brought on by the CEO with no tact This is an incredibly powerful book that drew me inThis book really hit home for me Freuent visitors to A Bookish Affair probably know that I had identical twin girls in April I did not write much about my fear while I was pregnant but I was absolutely terrified while carrying my girls I knew that my pregnancy was high risk off the bat because of carrying twin girls I was always ite jealous of those lucky moms only carrying one baby who seemed to effortlessly be able to carry on with their lives while pregnant This book shows that the grass is not always greener on the other side There are people with normal pregnancies where the difficult can still occur Fei went into labor at five and a half months pregnant and had a little girl She takes Their Mistletoe Matchmakers us into the NICU a place that is both amazing and heartbreaking sometimes at the same time I thought there was a good chance that my girls would endp in the NICU Fei talks of her guilt and worry over having done something that made her daughter come so early Having gone through that myself to some degree she really captured that well You really do feel helpless and like there had to have been something you could have done differently It is hard to explain all of those feelings that you go through but Fei explains it perfectlyThis book pulled me in hard You feel for the entire family Without the CEO debacle the whole situation still would have been so incredibly difficult This book shed a light on how benefits may not be as beneficial as they could be for families in need Those who care about families and worker s benefits will be drawn to this book Those who are looking for a real and raw memoir will also be drawn to this one What a read I chose to read this book to better nderstand the work that my daughter a NICU nurse does Deanna Fei whose daughter Mila was born extremely prematurely praises all of the medical professionals who cared for her child As I read this memoir I felt that I was living every anxious moment with Fei as she kept vigil over her child This experience will make all parents grateful for healthy children who have not had to overcome such odds and will summon admiration for those who never gave p hope that their babies would survive to lead normal healthy lives I don t recommend doing what I did if you are at all ashamed about crying in public With my own seven month old at home most of my reading time occurs during my commute I m also still surprisingly emotional in my new mom state The combination means I had to fight back tears or just let them come while sitting in train cars and on buses But I couldn t NOT read this book Every day that I was reading it I couldn t wait to pick it p again After my own experience with a complicated pregnancy a late preterm infant and some time in the NICU Fei wrote about things that I could connect with but I don t think the reader needs to have any kind of of personal connection in order. Eadsheets wielded by cost cutting executives to the insidious notions of risk surrounding modern pregnancy; from the wondrous history of medical innovation in the care of premature infants to contemporary analyses of what their lives are worth; and finally to the depths of her own struggle to make sense of her daughter's arrival in the world Above all Girl in Glass is a luminous testament to how love takes hold when a birth defies our fundamental beliefs about how life is supposed to begin.

Deanna Fei is the author of the new memoir GIRL IN GLASS Bloomsbury hailed as “extraordinarily beautiful” by NPR and “an impassioned important book” by the Washington Post GIRL IN GLASS was recently featured on PBS NewsHour Melissa Harris Perry on MSNBC and NPR’s All Things Considered among other outletsIn 2014 Fei's essay “My Baby and AOL’s Bottom Line” went viral worldwide and sparke